A ramble 2.0

Dearest lovely readers,

It has been a while, hasn’t it?

Things have been tricky lately. I have been on a break on almost everything. Rambles and updates seem to be a favourite so here goes…

I spent a couple of weeks with my partner in the south west. The train down saw me stranded in the rain for a few hours before I got on track to my destination. The stress caused a week of exhaustion. But, despite the worsening mental health, it was still lovely to be beside the sea. I had some beautiful gelato and plenty of hugs and down time.

In the good news, I have just 2 weeks to wait for my degree classification. My nerves are starting to get jittery. I am eager to see my scores. The first part of my future being concluded. It is after all, 5 years in the making.

This week I was told I have fibromyalgia. This wasn’t a shock as such, more an answer and validation of what I have been going through so long. I still have yet to come to grips with having yet another chronic condition at just 25 years old. It can be quite daunting, can’t it? I have realised I have yet to speak of my physical condition history. Maybe my next post? It is all very new to me and I look forward to learning more. It is my hope that in the coming months I will learn better pain management techniques and slowly build up endurance. I may never get to where I once was but I hope to be able to at the very least be functional through my pain.

My mental health has been a greater pain lately. I will be honest and say things are getting worse. I’m reliving things I’d sooner forget. My care coordinator believes there is a strong possibility I have PTSD. So in the coming months I will also be seeking answers for this. I want answers as to what could be causing my dissociation which is occurring nearly every day. In August I hope to have an overhaul of my medication and to start the assessment process.

Now life in general?

I am getting by.

Everything is slowly opening back up. I went to the cinema yesterday and my anxiety was outstandingly high! Clearly, I have gotten out of practice being outside. It is going to be hard to adjust. I saw my two best friends Friday evening which was lovely, but I felt a little… well, I’m unsure. I don’t have many friends these days, but I appreciate those two like you wouldn’t believe. I have many challenges to face it seems.

I have been pondering and reflecting on my life, the way I have made changes. Whilst I am limited, I have faced loneliness. I have faced my other self-states. I am still going.

Whatever challenges you may be facing, I hope you keep going too.

All my love,

L x

Nearing the end of a degree

Dearest lovely readers,

It’s been a while since I spoke about my personal life, and it’s been a while since I last posted. Life is just a whirlwind for me, or is it for you too?

A few weeks ago I submitted my dissertation and first ever research project focusing upon positive psychology. I got my grade back at 82%. I’m so proud of what I have accomplished. Since then I have submitted more assignments with just one left before I get a degree offer at the end of July.

I have been doing this degree since 2016, 5 long years. I think about all that I have gone through, how much has changed. I don’t think I could ever summarise this part of my life, the evolution I have gone through. For someone who thought they’d never accomplish anything, I’m getting there.

Getting a degree means the start of a life, the start of a future I love and can be proud of. It’s the start of independence for me, a sign I’m growing. I know innumerable people graduate every year, but this is something special and unique for me.

Some assignments and material was interesting and easier to get on board with, but I’ve also cried over assignments when drowning mentally and feeling like nothing would change.

There are so many options for a future career for me following getting that piece of fancy paper. I have decided on a few options. But for now, once that assignment is handed in, I will be taking a break.

My mental and physical health is still poor so I want to focus on recovering from my relapse, maybe start a new creative project, read some books. And volunteer. I have started training to be a Crisis Volunteer and hope I can go far in helping others.

Things have been a little tricky, I am always honest when I’m not okay. Some memories have been haunting me each night, things I wish I could forget. But as life goes on, so must we. I’m dealing with it better, I guess practice and exposure increases resilience.

I am starting to find joy in activities again, it’s always a slow process but we get to where we need to be. I also have some exciting trips planned as restrictions ease where I am. In just a few weeks, all being well, I shall be off to London to see my partner, we have some exciting things planned and I could not be more happy at the thought. I’m enjoying reading and finding myself to be okay in my own company again.

I guess, during these times, I want to offer a message of hope. We all have potential in our lives, and hard times come, that’s life’s nature. But we must carry on. Good things will always come back around.

Much love,

L x

Considering alcohol

Dearest lovely readers,

As mentioned in my previous post I would write a word on alcohol in our society. Now, I would like to note this is not representative of everyone’s view on alcohol. These are just some things I have noticed and felt that alcohol can be an impactful factor on well-being.

There is something important I have learned on my journey through sobriety, and that is the varying forms alcoholism. Being an “alcoholic” or someone who misuses alcohol is definitely not always what we see on TV.

We use alcohol not only to socialise, but for special occasions, celebrations, we give it as gifts, meals, to relax, to taste, to binge on, to let off steam, it’s on banners and cards to give others. You can go into stores and there is always a selection of wines, ciders, ales, beers, spirits, then mixers and alcopops. The SGS Handbook makes a poignant question: if all alcohol was packaged as cigarettes currently are, all the same and bland, would it be as popular?

We so often forget that alcohol is a drug, a depressant which can slow down brain functions whilst also inducing lesser inhibition (1).

Alcohol can easily and quickly become addictive, or used as a crutch regularly. The reduction on inhibition can lead to impulsive and dangerous situations much like other substances. I myself have ended up in unsavoury situations and positions. Often having episodes of anything bad happened. Alcohol can also leave you feeling low for days on end as a come down because of its depressant activity.

Alcoholism is related to 5% of worldwide deaths and is the fourth most preventable disease in the world (2). The result of alcoholism is a weakened immune system, poor health (both mental and physical), poorer relationships. Alcohol works as stereotypical illegal drugs in gaining tolerance and having to drink more and more to get the same feeling, and it can start from the first drink for people.

The NHS details many more risks and long term complications around alcohol use and helps to give help if needed (3).

Can alcohol be enjoyable? Absolutely. But should it be as celebrated as it is? To me, knowing what I know now, not really.

I am proud of being sober, and as someone who was told by a GP on their 21st birthday that they’d die if they kept up the drinking of alcohol, I wish I had learned sobriety long ago.

Much love,

L x

(1) https://www.addictioncenter.com/community/is-alcohol-a-drug/

(2) https://www.therecoveryvillage.com/alcohol-abuse/

(3) https://www.nhs.uk/conditions/alcohol-misuse/

My social media story

*CW: mention self-harm/suicide*

Dearest lovely readers,

We have, over the years, been inundated about the dangers of social media, others arguing “it’s not so bad”. We have seen the arguments rage on since it’s invention. Let me tell you, a bit of my story – this is not the whole story as one part from my young, naïve is difficult to share.

Like most my age, I started on social media very young, maybe around 11 years old. It was fun. I became bewildered at how easily I could make my own website, how easily I could change things and it started an obsession. As I grew older I was able to talk to my friends any time I wanted, I could share ‘fun things’, I followed “deep” pages sharing in my teenaged angst. I felt understood. I was obsessed with a game call YoVille on Facebook when I was around 13 years old. That game caused some real danger and I learned of the dark side very young, but without the true understanding of how the world works.

Around 15 I was on another site, WeHeartIt, which I liked because no one else I knew was on it, I could find pictures I loved. Unfortunately, safe guards around self-harm and suicide weren’t there and I saw many pictures which affected me.

I grew an affinity to ‘liking’ people’s things as a way of showing affection, or telling people, “yes, this is good content” and I didn’t really even realise it. But by the time I was 18, I started lessening what I reacted to, putting up less and less statuses. But yet, I would endlessly scroll, and scroll, and scroll. This was my life until a few years ago, I learned that I was part of (one of) the big Facebook scandal in which millions of people’s data had been took for the 2016 election. That was when I did my research. Whilst I still kept on scrolling, I started to see through the façade, I started to see more content that was harming my mental health.

I became one of those who would compare themselves, and felt inferior. I then started seeing a lot of media content that would enrage me but had no choice in whether I could see it or not. And so I quit Facebook. But then I still had Instagram. The exact same cycle happened.

I became addicted to seeing these that would embroil me in emotions and I just couldn’t stop.

Overall, yes I enjoyed posting things and connecting with friends to see what they were up to and yes, even getting the few likes I got. But yes, I also felt disheartened when I didn’t get many likes, I felt anger at seeing people’s views that didn’t match my own, I also felt pity for myself seeing how “far ahead” others got in life. Social media made me critical of myself and others. And that just does not par up to who I am. So I quit.

And I feel free, I relinquished those chains.

Ultimately, it is how we use social media that matters and when it starts to feel awful, that is the time to quit.

Much love,

L x

Year in review and looking ahead

Hello dear ones, how are we feeling?

I’d like to take a little moment just for you to check how you are feeling, take a deep breath and just settle in for a little read. I’d also like to thank you all, our little community, for all your support this year. I’m so thankful for those of you reading my posts, my thoughts on different topics, it’s been quite the year hasn’t it? Welcome to all the very new people too, you are most welcome here.

This is a bit of a stereotypical post I suppose but I feel like doing it anyway. This year has undoubtedly been hard, at times heart-wrenching, and chaotic, I could easily list and rhyme off countless miseries of the year. But I’m more about hope in this little space. At times it can be more powerful than sadness and fear, which a lot of people can experience at this point. A time when post festive season blues can kick in, or when it can feel daunting that another year is here. People online mocking those thinking 2021 will “magically” be better. But I say, what’s stopping it from being like that?

Now, I’ve pretty much kept you all up to date on what I have been going through but I thought it’d be great to just have a little summary post of things I have enjoyed, little moments, small wins and what I’m so looking forward to now in this new year.

I think one of my all time favourite moments of 2020 was when I was down at my partner’s and we spent a hot, sunny day on the beachfront, sat on a bench and watching innumerous dogs pass by. It was just such a wonderful time, where I felt carefree and I was with my favourite person. We were just sat there for over an hour, and I loved it. Christmas was also so, so wonderful and I got to take plenty of Polaroids to put in a new scrapbook, very retro. Much earlier in the year I got to present and do a bit of motivational speaking for the first time, rather than purely speaking my experiences. It was so much fun!

I am proud of a few accomplishments of 2020 including passing another year of university with flying colours, starting my final year. I have, this festive season, tried two new foods and really enjoyed them. Earlier in 2020 I also found I could watch certain foods cook without being so averse to it. These are huge wins on their own.

I have learned the true value of gratitude and been so appreciative of my aspects of my life. My strength truly has been tested like never before and I’m still coming out winning. As my dissociation got worse, I became so afraid, but with the help of others and through my own self-determination I’m getting back on track. Again, I’m very grateful for this.

So what’s ahead? Well, a lot. This will be the year I finally graduate, I am hoping to do my Master’s Degree if not finding a job in mental health. I will be moving out, across the country. I hope to do more volunteering. I will be continuing this blog. I will get answers about what is causing all my physical pain, I will be trying to get my body stronger. I hope to finally be able to have savings.

It’s definitely sounding like a lot for that. But for now, my goals for the first quarter are to focus on assignments, get a little workout regime sorted and eat a little better, have a small emergency savings fund, focus on deepening my connection to Buddhism and finding a new volunteering placement. Little actions with little steps are the key here. Of course, I will also hopefully create some good content for you here as this section of the internet has been so wonderful for me. I hope that is reciprocated.

I hope you are able to find some wins in 2020, and I hope you all have a magical year ahead filled with such joy, goodness and happiness.

Be gentle with yourself and take care,

L x

Reflections on November

Hello all my lovelies,

If you read my posts you know I love a good reflection. So I thought, why not reflect on a tumultuous month such as November?

I will be honest, November is a month I am struggling to remember giving that my mental state is not at a decent capacity. There were definitely some atrocious days but I can’t say it was all entirely bad and these words have such strange meanings, I guess the correct version would be it was a hard-hitting month.

So I have a couple of topics in mind, let’s take it that way. I think rounding up with all the things that cause stress would just make this a very depressing post. While I’m not for toxic positivity I do think I need to be realistic.

So, let’s start with relationships. Relationships are often a foundation of how we cope, they are apart of us. Having at least someone to back us up can make all the difference. I can happily say I have had no problems with support and positive relationships during November. My family may not have understood what I was going through, but they checkeup on me and helped where they could. Whether that’s taking up additional chores from myself or feeding my wonderful guinea pigs: and they gave me respect. My partner was fantastic, he was essentially my sounding board and while I tried to be a good partner to him, he was very respectful when I couldn’t give 110 percent all the time. So no complaints here!

I guess health would be the more contentious issue. I will be straight up honest and say that my GP he was of no use during this time, I understand that there are many stresses going on behind the closed doors (I’ve seen what happens as a GP receptionist). But I have come to find out that when I asked for my antipsychotic back and he made no mention of my circumstances to the psychiatrist it essentially was “can L have her antipsychotic back?”, so I’m glad I took it upon myself to write a letter about my mental capacity when I was more lucid. I would like to let you know that I have since gone it back until my telephone assessment with the mental health team in a couple weeks time. They were shocked at how I have deteriorated and quite unsure as to why my GP did actually take me off it. So I am happy to say I have been sleeping for the first time in many weeks.

With physical health, I’m not further forward until I have MRIs and the next rheumatology appointment but I have since purchased a support to help me sit properly, knee braces and a cane to walk better. They do help so that is also a bonus and I haven’t gotten physically worse which I really count as a win.

University! What a bonus. It’s been a really positive one, because I got back my first assignment results for my final year at 72% and 78% which I am quite happy with. I have feedback that is constructive and can use in the next assignment to hopefully improve upon. My tutor who will be helping me on the research project in particular has been so supportive and understanding which is really just refreshing so I know, should I falter infuture they will be there to ensure that I take care of myself.

November felt truly terrible in the moment but this is why reflection is important. You gauge the true impact of each moment and my reflection has shown me that yes it was awful but I had a pretty successful November, that’s my takeaway and I think it really puts things into perspective.

Wishing you all my love,

L x

A ramble on my health

How are we all? I sincerely hope you’re all well as the nights get earlier.

So I haven’t done a ramble in a while and I know it was liked a while back. So I thought I’d do a little update on health. I find with both my physical health and mental health, each will dip one after the other.

In August, I had a day being bedridden and thought, “I’ll heal up quickly, my arthritis has spread to my knees but I’ll be fine”. Let me tell you, it definitely was not fine. After a few blood tests, medication changes and many calls with GPs I was finally referred to a rheumatologist. I now spend most days in bed, I have almost fallen a few times because my knees have given way. Just the other day I spent 7 hours in A&E due to my ribs burning and having shortness of breath. I am rather immobile. On top of this, my mental health became disastrous at the same time which has been very rare. I had an awful episode the other week.

Yet I’m still here.

I’ll be honest, the fatigue is getting to me, I really am feeling like everything is out of control. I started November 1st utterly depressed, then manic, making lots of goals and plans to improve my fitness and mental health. Yet it was not to be after this week. And I have accepted that. I guess the fear of what is going on in the world got to me. And that is okay too.

People often say we have to help ourselves and have this notion that we can just fix ourselves when really, chronic conditions are usually pretty much here to stay.

So what have I done to help myself? I have followed basic self-care and fought to be referred to rheumatology, my appointment is next week and while I will definitely struggle to get there, I will be there. I have took up private therapy to work through everything. I am taking new medication for my mental health, having been taken off my antipsychotic and adjusting to that. I have accepted that all of this is a process that could months, but I’m prepared to see it through. But for now, I shall have to do what feels right for my body and mind, even if it’s not the way I want to be.

I have found that in these times when everything seems wrong, we must especially have hope, find the strength to keep on and keep going forward, otherwise what was the point of starting the journey to fight? I will not lose the joy and wonder of life. I will keep writing, reading, studying for uni, studying Buddhism. I will keep myself going and fill life with what I love as much as I can.

I shall also use the wonderful Black Dog Institute mood tracker to keep an eye on things and see where I’m at with myself, my 2012 style.

It is times like these where I really see the inder-dependency of both mental health and physical health and the impact of each other and how they link. When I feel so limited in my body, my mood utterly drops. When my mood is low I don’t try to do much with my body which hurts it. Times like these are why I’m so grateful for when I am well. Yet, I’m strangely grateful for these times too when I think about it and reflect. I know that doesn’t make sense. But nothing is permanent, and I learn what I can from these points and I’m reminded of my unadulterated strength of being able to get through this.

Keep going lovelies, we got this.

Much love,

L x

Why we shouldn’t avoid the negative

*Content warning: mention depression and suicide*

Welcome back, are we settled in?

Now, talking about the negative I don’t mean the news. Avoid that all you want if it worsens your well-being. I am talking about our negative experiences, our emotions today.

I have long been fascinated by the scope in which humans feel, the array of emotions and moods we face. I have also been fascinated by why we try to avoid feeling anything resembling ‘negative’. I thought today, I would share some of my thoughts on this, and this is purely my opinion and experience of emotions and pain and is not representative of other people’s experiences.

Having experience of mental illness has obviously meant that I have seen all emotions, both highs and lows in the most intense way due to my personality disorder. Looking back, it feels like since I was 15 I lived in nothing but emotional turmoil, always wanting to die. I always wanted to escape the pain, I would try and fight it and lock it away in a heavy safe to chuck in to the ocean. I despised my own experiences, understandably. However, since having therapy I have learned a thing or two about the purpose of what we view as negative emotions and suffering and the purpose.

I am writing this as I feel in a position to feel okay talking about it, if you must know, I am feeling very cosy right now wrapped in a fluffy blanket with fluffy socks on a very grey day…

I feel like there is this notion within society that to be a perfect human, everything in life must be perfect and happy and all sunshine and rainbows. Nothing less. It is also one of the worst lies I have ever witnessed. For life to be real to us, we as humans will experience the very depths emotionality and experience have to offer. No filtered façade. We experience things like anger or rage and worry and sadness for very real purposes.

Anger teaches us when our values or boundaries have been crossed. Worry tells us when something is wrong or we may feel guilty because we know we have done something wrong. Sadness teaches us the meaning of loss or change from what we knew. I feel we learn a lot more about ourselves during these harder times than we ever would as someone constantly seemingly happy. I say seemingly on purpose. Because no everyday person goes on in life without experiencing these emotions.

We learn our strengths. Our resilience. Our meaning and values. Maybe even our purpose.

I recently learned that to overcome problems, we must make friends with the problems (so our emotions, our thoughts…) almost as a “self-antidote”, there we will be able to travel the road much more easily. Shying away or putting our head in the sand, or distracting ourselves won’t help. It may temporarily ease our minds and our hearts but the problems will only get bigger.

Feel what you need to feel, but accept this and don’t fight, then, you may find a resolution just that little bit more easily. You then learn more about yourself.

I have definitely fought within myself countless times, from thoughts to feelings to actions I have done. I just wanted it all to go away. But it never goes away until it is dealt with, a tale as old as time. I understand the pain and wishing it all away on a lonely night, but trust me, put that fighting energy to good use, and find that resolution, seek out the light.

Much happiness to you,

L x

Arthritis, physical and mental health

Good, good afternoon everyone, how are you doing?

Come on in and let’s have a little chat – I am afraid that this post may not be as positive as usual and there is a content warning for this post: I speak around depression. But current circumstances are something I want to talk about.

Essentially, I have had problems with my back since I was in year 7 (12 years old), I slipped on ice and tore the muscles in my lower back. Every so often, I would have a flare up that resulted in some quite severe pain. I would go to the doctors and, like clockwork, be prescribed some pain relief and onwards I would go. In December 2017/January 2018, it was really bad. I ended up needing an MRI because of the sensations I was having down my legs; numbness, burning, pins and needles. The A&E stated it was muscular and that the MRI would show nothing. It turned out I have a couple disc protrusions and arthritis in the lower half of my back.

As you can imagine, I wasn’t pleased. But I went on with the pain and taking medication as needed. It eventually started in my hips over the next year and I ended up (and now) taking pain medication daily just to keep on top of the arthritis. Recently, my knees have now given way and the bad flare ups can last for a few weeks. But the toll it has taken on my mental health is something that needs to be discussed. I hope by sharing this, I can help someone else reach out if needed.

Most of the time, I can quite happily continue on with life, make light of my situation and just do things as best I can within my ability. But these last few weeks, with my knees being swollen and having odd sensations, I can barely walk for 15 minutes. I have had to rely on family to drive me to the shop, or to the vets for little Brenda. It is not a great feeling, I will grant you that. But each time a flare up occurs, it seems to feel worse. I hit a very low point, fuelled by frustration and panic. One thought that has recently stuck with me is: “if this is me at just 24, what am I going to be like when I turn 30, or 40?!”

It is quite scary how much I am impacted, because I worry about my physical independence, I have always hated relying on others, feeling like I should always depend on myself only. To me it is a very real possibility that I just will not be as mobile in just a few years or decades. It fuels my anxiety to an extreme. Most people will say not to think like that, but if I live in complete ignorance, then the shock of what may come will hit harder. That expectation does not get me low despite the anxiety, it feels realistic.

But when I have flare ups, yes, my emotions run high. This is because I suddenly feel so limited, unlike with mental health, I don’t have any warning signs, I wake up and am stuck in bed. If the pain is beyond control, I do become upset, I can become someone who feels like everything is meaningless – near nihilistic. I am like this for the first few days, just wanting to cry and do nothing else. When I become used to my “limited” capabilities, I adapt, so I can study in bed, have a little more assistance with the guinea pigs or getting somewhere I need to be. I am thankful I have such a great support network.

At the moment, I am struggling a little bit with adapting, I am unsure how many weeks this flare up has been going on for to be honest. It feels like a long time. But that is what happens with a chronic condition. The ways in which I cope I feel are healthy, I use the spoon theory to delegate my time well, I have found ways of adapting so things I need to do are still done without much impact on my body or mind and I have a support network to help keep my spirits up.

One thing I am truly thankful for is that I never feel worthless, I don’t feel as devalued because I cannot do as much. I remind myself, the pain is temporary, this is just a temporary new normal. If you suffer with chronic pain, I hope you know you are still as worthy as any other human, you are absolutely brilliant and I see you. I applaud your bravery for fighting every day and continuing on as the fabulous human you are. Because it is hard, at least in my experience. The impact on mental health is no laughing matter, and if you need help I hope you seek it.

Keep on going,

L x

Times are hard: an update

Hello wonderful people 🖐️

Gosh, it’s been a while so I thought I’d do a little update on what has been going on in life. I won’t lie, things have been geting incredibly hard for me as I become increasingly unwell. But fight on I must, right?

Last week’s post gave a little glimmer into what I go through on a daily basis, right now my mood has just dropped and I am not entirely sure why. There are a few contributing factors I have theorised but it has ultimately meant I have found myself on a dark path. Instead of being in denial I am openly admitting I’m definitely not okay right now. I am barely sleeping which definitely doesn’t help. BUT… I am seeking what professional help is available.

So what else has been going on?

My family, overall, are well. We are carrying on as we can. My mother landed a job in her career change which is absolutely fantastic!

For me, I have been doing CPD courses now that I have officially finished Stage 2 of university with a solid score. The CPD courses are in Life Coaching which I have found interesting, I’m doing it in hopes of learning new skills which are applicable to future roles I’d love, like a Mental Health Social Worker.

Also, anyone who knows me is aware of the fact that I used to be a hardcore lover of paperback books and detested e-books. Well consider me partially converted, I never knew much easier it was to read on a Kindle so I have bought a few more e-books, I still love old fashioned books of course, that will never change.

I have also found myself playing with my piggies even more, they have been rather funny lately. My partner loves to buy them a lot of treats, one being a wooden ball toy with hay inside, Blossom being greedy, stuck her head right in and could not get her head out the other week! Also, they now have a very giant hut that looks like a basket because my partner doesn’t check sizes, but they are very happy in it and that’s all that matters 🙂

Not much else has been going on, which is to be expected really. How are you all faring?

Thinking of you,

L x