It’s been a while..

Dearest lovely readers,

It really has been a while hasn’t it? I can only apologise.

Have you ever felt so lost it’s like you’re on a rocky path that seemingly leads to nowhere in the dark? That is what it seems to have been for me during my period of silence. Everything running out of my control and in ways I couldn’t imagine. If you have ever felt like this, then you’re not alone, I am in solidarity with you.

My health has drastically changed over the last few months and it’s taken some getting used to. I figured, whilst I was in a good place, I’d update you.

Well, I came out with a First Class degree in case you were wondering. Top of the top, my work will also be used as a good example for future students to learn from. So that saw a period of celebration. We also celebrated my partner’s 30th, it was low key but relaxing and an overall good day! My partner has been coming up to see me and will do so again this coming Tuesday since I am struggling so much. It always feels wonderful to be around him.

Mental health wise I have been up and down. I’m currently coming off a medication slowly as it didn’t seem to be as effective anymore. I was happy to do this and honestly? I do feel a bit better for it, I’m certainly not as foggy (though fibromyalgia doesn’t help). I feel a little more free when I am well. The down periods do certainly have an impact lately, I have been easily triggered and ideation is happening more than I’d like. But with the help of my mam, family and partner I’m coping.

Physically I have been rendered mostly bedbound again. The fatigue has been so real, and nigh on constant, as has the ‘fibro-fog’. Which I am sure many understand. The flares have been getting worse I assume due to my mental health worsening.

What makes this harder is the delays in treatment. I have been waiting for two months for a rheumatologist letter to get to my GP for a referral to a management clinic. My therapy for what I’m going through is now paused indefinitely. There is certainly no change coming from services soon.

So what do I do?

The disappointment with therapy being cancelled overwhelmed me. But I had a choice. Let it consume me for weeks or fight to find a way out of this darkness.

So.

I have bought some informative books from very trusted sources and am essentially going to study myself better. Making changes in my life where I can and prepare for my next meetings/appointments so I can question possible things that may help.

I am not giving up. I can’t. What good would that do?

I do firmly believe in things like correct psycho-education and self-help from the right sources, I think a lot of good can be done from that. So I’m off to study.

How are you doing, dearest? I am here.

Much love,

L x

A ramble 2.0

Dearest lovely readers,

It has been a while, hasn’t it?

Things have been tricky lately. I have been on a break on almost everything. Rambles and updates seem to be a favourite so here goes…

I spent a couple of weeks with my partner in the south west. The train down saw me stranded in the rain for a few hours before I got on track to my destination. The stress caused a week of exhaustion. But, despite the worsening mental health, it was still lovely to be beside the sea. I had some beautiful gelato and plenty of hugs and down time.

In the good news, I have just 2 weeks to wait for my degree classification. My nerves are starting to get jittery. I am eager to see my scores. The first part of my future being concluded. It is after all, 5 years in the making.

This week I was told I have fibromyalgia. This wasn’t a shock as such, more an answer and validation of what I have been going through so long. I still have yet to come to grips with having yet another chronic condition at just 25 years old. It can be quite daunting, can’t it? I have realised I have yet to speak of my physical condition history. Maybe my next post? It is all very new to me and I look forward to learning more. It is my hope that in the coming months I will learn better pain management techniques and slowly build up endurance. I may never get to where I once was but I hope to be able to at the very least be functional through my pain.

My mental health has been a greater pain lately. I will be honest and say things are getting worse. I’m reliving things I’d sooner forget. My care coordinator believes there is a strong possibility I have PTSD. So in the coming months I will also be seeking answers for this. I want answers as to what could be causing my dissociation which is occurring nearly every day. In August I hope to have an overhaul of my medication and to start the assessment process.

Now life in general?

I am getting by.

Everything is slowly opening back up. I went to the cinema yesterday and my anxiety was outstandingly high! Clearly, I have gotten out of practice being outside. It is going to be hard to adjust. I saw my two best friends Friday evening which was lovely, but I felt a little… well, I’m unsure. I don’t have many friends these days, but I appreciate those two like you wouldn’t believe. I have many challenges to face it seems.

I have been pondering and reflecting on my life, the way I have made changes. Whilst I am limited, I have faced loneliness. I have faced my other self-states. I am still going.

Whatever challenges you may be facing, I hope you keep going too.

All my love,

L x

A celebration in London

Dearest lovely readers,

It has been a while hasn’t it?

Well, I am here to talk today about little breaks away.

Following finishing university and passing my training to be a crisis volunteer I went to London to meet my partner. We spent 5 wonderful days away in London.

I have been struggling with my mental health problems quite a bit lately, so much so, it looks like a new diagnosis may be on the horizon (I will leave that to the professionals though). Even they took a break for me.

London has always been a special place for my partner and I, it’s where we first met and it’s the “middle” of where we can meet given we still live on the opposite sides of the country!

It was so relaxing, doing a spot of shopping, treating each other, visiting the aquarium. We even went for a meal out! It was so lovely to just relax and spend time one another. We enjoy London every time we go (the tube not so much I will admit).

I always say that self-care should be the basics and most simple things, but sometimes even a short break away can make all the difference. Getting to put a pause on life, even for an overnight stay can leave people feeling refreshed and rested. I think it’s an important thing to remember that we all need a break sometimes, and it’s completely okay to do so. It doesn’t have to be an expensive affair. But getting away can make all the difference to your mental health.

I feel refreshed and ready to tackle life once again, maybe it was seeing my partner but I felt safe and loved and came back home to get things on the right track again.

Have you got any little breaks away planned?

Much love,

L x

Taking a break in life

Dearest lovely readers,

Welcome back, I hope you have had a wonderful week. Welcome to the new people joining this week, it is great to have you đź’–

Life is full isn’t it? It can be so hard juggling not only the multiple factors of well-being for yourself, but also for those around you, without adding every other aspect of life like appointments, work, hobbies… I could go on.

I think there is solidarity with all people across the world in sometimes feeling like we need a break from life, to just press pause and take a break, catch ourselves up, regroup, rejuvenate. It’s ridiculously hard trying to do that, we may feel we don’t have the energy, or time, or resources. In some cultures, resting is frowned upon, I would say this includes the UK in some sectors.

We must always be doing something. If we are unemployed, we must be lazy. We need hobbies, and nights out socialising, long hours of work, volunteering, taking care of our families, and I could go on. But I want to start breaking this stereotype of life down.

Being “on” all the time isn’t possible, we aren’t machines, we are human. And humanity needs a rest sometimes. Just to clear our heads maybe, so we would with a meditation or prayer, or a lovely bath. Or we may need something longer term like time off, traveling somewhere, or just resting in bed for a few days.

No one truly knows what we need but ourselves, and maybe someone very close to us within our support network. I’m going to be honest, it’s a reminder I need right now.

I have been so focused on getting ahead with university and my dissertation, finding a new place to volunteer, keeping in very close contact with friends, cutting down cigarettes and pop intake, meditating more, doing hobbies more, trying to walk more, cleaning my room more than I should, battling pain, battling cravings for alcohol, battling incessant paranoia and tearful night times.

While some of this sounds very positive, it’s too much. My head hurts and my heart aches. So I need to take a break. I need to hit pause, reconfigure my priorities and move with a solid plan for myself. This includes possibly being less consistent with our space that we have created. I love what we are doing here, I love our moments to connect. But I am needing to take a huge step back on everything and looking at how to keep myself in a safe place without overdoing everything. So I may post on a different day or not for a week, just for a little while.

However, do message me or comment your preferred days for reading in this space. Because it matters.

If you need a break, I hear you.

All my love,

L x

An little open letter to 16 year old me

Dearest Me,

You are now freshly turned sixteen years-old and right now, you are exhausted. You are overwhelmed. You are frightened. And looking back it is so easy and visible to understand why.

Sleep is a rarity, food has become the one thing you can control again, you would much rather just leave this plane of existence, you are overwhelmed and lost in emotions, chronic emptiness and baffled by what you experience inside your head. You don’t know why this is happening.

You now spend your lunch in the library alone working on preparing for your exams. You think life just cannot get much worse.

As you grow, life is going to get messier, more complicated, more nuanced. You will struggle, there will be times when it feels as if it could not get any worse, then it does. I will not lie.

You will make questionable choices when it comes to love, you experience the thrills of a partying lifestyle, your social circle grows then shrinks to those who matter most to you, who truly lift you up out of your bad times. You gain your family’s wholehearted support.

As you grow, life is going to become a bit easier though. You get therapy, and meet some wonderful workers who give you hope about the system.

Where am I right now nine years later?

You have found the man you want to spend the rest of your life with, one whom respects you and sets your world on fire, who gives you the healthy relationship you deserve, and understands better than anyone what you go through. You are about to graduate university, which may be a shock given you thought you’d never get there. You have made some wonderful friends too. Your immediate circle is filled with true friendship. You find your faith system.

More importantly, you become happy and satisfied with life, you’ve learned how your illnesses work and what to do in order to quell their flames. We struggle, but we do not struggle alone. That is what matters.

My advice to you: live life, explore what needs exploring, we don’t know what the future holds, we will get to where we need to be when the time comes.

Hold on, dear one, because life is just beginning, and it’s wondrous.

All my love,

L x

The importance of a support network

Hello all. I am wishing you joy, contentment and good health right now.

First off, we recently have had an influx of new lovelies joining us and I wish to say welcome to an accepting place where I am honest about my experiences but also try to bring hope and positivity into the discussion. Please do join in, and I hope you settle in well.

For those who may not know, a support network is is a group of people that you are connected to, who help to support you through life. It could be family members, friends, support workers, people you can go to when you need them. For myself, my support network consists of my immediate family, a handful of friends, and my partner and that’s enough for me. It’s a group of people who I trust, who uplift me and inspire me when I’m feeling low and so much more. I have been relying extensively on my support network at the minute with everything that’s going on in my life.

They can act in small ways such as helping me with food or simply understanding that at the moment I am quite limited in what I can do, or it could be greater gestures such as taking me to appointments throughout each week which had been a fair amount at the end of last year.

Once upon a time I wouldn’t have dared to seek support in others, I thought I had to rely on myself because it felt like it would all be a misunderstanding. It could cause the greatest suffering to myself, opening up in a way that I didn’t feel comfortable with. But now, I have no qualms about seeking support because I know it will be there.

It can be hard personally because we are thought of in society that we should be individualistic.

Pulling our socks up and getting out there.

Doing what we need to do.

But I am here to challenge this notion. We only got to where we are today because of collective support, I’ll say that again, we only got to where we are today because of collective support, collective intuition, collective knowledge, collective strength and collective hope. So why is it that nowadays it is frowned upon to ask for help even in things such as our daily jobs? Why is it we who have chronic conditions be the reason to blame when we cannot pull our socks up and do what what society deems correct?

I dislike living in an individualistic society where I have to live under the court of public opinion that does not fit the narrative my life has took. I know of so many people who have tried to go it on their own and haven’t succeeded. I see it hurt them time and again, and through my previous work I learned that we cannot do it alone. It is simply impossible, there is always someone around who will help another individual, I firmly believe in that.

When I finally learned the confidence to speak out about when I needed help and what kind of help I needed, I was glad. I managed to gradually spread that to my few trusted friends, to my current partner and my family. While I can sometimes feel like a burden, I suppose this is all natural, I am grateful for all that they do for me. I feel no shame in asking for support, for encouragement, for love, for inspiration, for strength, for kindness: especially kindness. It is a basic human right to show others kindness, compassion and understanding; this is essential in a support network.

More importantly we all deserve a support network, we all deserve our little community that give us strength and clarity and hope among many other things. If you feel so isolated and like you have no one, I promise you there is someone and that someone will turn into many people who will be what they you need them to be. We cannot go through life alone otherwise what kind of life is it?

This is something I am passionate about. I am grateful for my support network and I love them all dearly. Although at times it may feel like I don’t deserve them, in reality I do, because I help them back and I won’t forever need help getting around the house. I might go through long periods where I do a lot other times a little, my life is uncertain right now now but having a support network grounds me and there are so many benefits to having us apart network. I say to you, you deserve the love and support that I have received and more.

All the loving-kindness to you,

L x

Year in review and looking ahead

Hello dear ones, how are we feeling?

I’d like to take a little moment just for you to check how you are feeling, take a deep breath and just settle in for a little read. I’d also like to thank you all, our little community, for all your support this year. I’m so thankful for those of you reading my posts, my thoughts on different topics, it’s been quite the year hasn’t it? Welcome to all the very new people too, you are most welcome here.

This is a bit of a stereotypical post I suppose but I feel like doing it anyway. This year has undoubtedly been hard, at times heart-wrenching, and chaotic, I could easily list and rhyme off countless miseries of the year. But I’m more about hope in this little space. At times it can be more powerful than sadness and fear, which a lot of people can experience at this point. A time when post festive season blues can kick in, or when it can feel daunting that another year is here. People online mocking those thinking 2021 will “magically” be better. But I say, what’s stopping it from being like that?

Now, I’ve pretty much kept you all up to date on what I have been going through but I thought it’d be great to just have a little summary post of things I have enjoyed, little moments, small wins and what I’m so looking forward to now in this new year.

I think one of my all time favourite moments of 2020 was when I was down at my partner’s and we spent a hot, sunny day on the beachfront, sat on a bench and watching innumerous dogs pass by. It was just such a wonderful time, where I felt carefree and I was with my favourite person. We were just sat there for over an hour, and I loved it. Christmas was also so, so wonderful and I got to take plenty of Polaroids to put in a new scrapbook, very retro. Much earlier in the year I got to present and do a bit of motivational speaking for the first time, rather than purely speaking my experiences. It was so much fun!

I am proud of a few accomplishments of 2020 including passing another year of university with flying colours, starting my final year. I have, this festive season, tried two new foods and really enjoyed them. Earlier in 2020 I also found I could watch certain foods cook without being so averse to it. These are huge wins on their own.

I have learned the true value of gratitude and been so appreciative of my aspects of my life. My strength truly has been tested like never before and I’m still coming out winning. As my dissociation got worse, I became so afraid, but with the help of others and through my own self-determination I’m getting back on track. Again, I’m very grateful for this.

So what’s ahead? Well, a lot. This will be the year I finally graduate, I am hoping to do my Master’s Degree if not finding a job in mental health. I will be moving out, across the country. I hope to do more volunteering. I will be continuing this blog. I will get answers about what is causing all my physical pain, I will be trying to get my body stronger. I hope to finally be able to have savings.

It’s definitely sounding like a lot for that. But for now, my goals for the first quarter are to focus on assignments, get a little workout regime sorted and eat a little better, have a small emergency savings fund, focus on deepening my connection to Buddhism and finding a new volunteering placement. Little actions with little steps are the key here. Of course, I will also hopefully create some good content for you here as this section of the internet has been so wonderful for me. I hope that is reciprocated.

I hope you are able to find some wins in 2020, and I hope you all have a magical year ahead filled with such joy, goodness and happiness.

Be gentle with yourself and take care,

L x

25 lessons

Good evening all,

So I love my lessons it seems. Yesterday was a big birthday (for me), I turned 25, I have had 7 additional years I thought I’d never see. Though I’m still young, I have learned a lot already, I’ve seen a lot of life in such a short time. I turned a quarter of a century, in the middle of a pandemic, it was my first sober birthday since 16 and probably my last one in my hometown (for a while at least). Yeah, that’s big for me.

So I thought I’d do a small post, just sharing general life lessons I have learned so far, it’s mainly a reminder to myself, should I ever forget. Something to reflect on as I get older.

1. Life can throw many, many terrible things at you, sometimes all at once (think 2014, L)

2. You don’t have to have everything figured out by age 18.

3. Following on from 2, plans will never go exactly according to your schedule.

4. Everything is impermanent.

5. You will see both the wondrous and awful nature of humans at some point.

6. There are over 7 billion versions of reality and what life should look like on this planet.

7. If you don’t want to experiment or “go wild” because you’re ‘young’, then don’t.

8. Live life according to yourself, and no one else.

9. There are extremes to every view and thought in this world.

10. Always seek help where you need it, in any given situation.

11. You’re going to mess up. That is an inevitable fact. No one leaves their life without making mistakes.

12. Don’t be afraid of having an opinion. It’s how you find your values.

13. Don’t be afraid of conflict. Though do not seek it out.

14. Violence is never the answer.

15. Set goals and dream, but be prepared to be flexible.

16. The future is never guaranteed, but certainly seek it out.

17. Sometimes being curious about the future is enough to find your way there.

18. Everyone has something to contribute.

19. Try your best to be compassionate, understanding and empathetic.

20. Communicate.

21. There is always something fun to do.

22. Don’t procrastinate.

23. Life has its meaning.

24. Everyone has strength.

25. Always, always keep going.

Much merry love,

L x

Reflections on November

Hello all my lovelies,

If you read my posts you know I love a good reflection. So I thought, why not reflect on a tumultuous month such as November?

I will be honest, November is a month I am struggling to remember giving that my mental state is not at a decent capacity. There were definitely some atrocious days but I can’t say it was all entirely bad and these words have such strange meanings, I guess the correct version would be it was a hard-hitting month.

So I have a couple of topics in mind, let’s take it that way. I think rounding up with all the things that cause stress would just make this a very depressing post. While I’m not for toxic positivity I do think I need to be realistic.

So, let’s start with relationships. Relationships are often a foundation of how we cope, they are apart of us. Having at least someone to back us up can make all the difference. I can happily say I have had no problems with support and positive relationships during November. My family may not have understood what I was going through, but they checkeup on me and helped where they could. Whether that’s taking up additional chores from myself or feeding my wonderful guinea pigs: and they gave me respect. My partner was fantastic, he was essentially my sounding board and while I tried to be a good partner to him, he was very respectful when I couldn’t give 110 percent all the time. So no complaints here!

I guess health would be the more contentious issue. I will be straight up honest and say that my GP he was of no use during this time, I understand that there are many stresses going on behind the closed doors (I’ve seen what happens as a GP receptionist). But I have come to find out that when I asked for my antipsychotic back and he made no mention of my circumstances to the psychiatrist it essentially was “can L have her antipsychotic back?”, so I’m glad I took it upon myself to write a letter about my mental capacity when I was more lucid. I would like to let you know that I have since gone it back until my telephone assessment with the mental health team in a couple weeks time. They were shocked at how I have deteriorated and quite unsure as to why my GP did actually take me off it. So I am happy to say I have been sleeping for the first time in many weeks.

With physical health, I’m not further forward until I have MRIs and the next rheumatology appointment but I have since purchased a support to help me sit properly, knee braces and a cane to walk better. They do help so that is also a bonus and I haven’t gotten physically worse which I really count as a win.

University! What a bonus. It’s been a really positive one, because I got back my first assignment results for my final year at 72% and 78% which I am quite happy with. I have feedback that is constructive and can use in the next assignment to hopefully improve upon. My tutor who will be helping me on the research project in particular has been so supportive and understanding which is really just refreshing so I know, should I falter infuture they will be there to ensure that I take care of myself.

November felt truly terrible in the moment but this is why reflection is important. You gauge the true impact of each moment and my reflection has shown me that yes it was awful but I had a pretty successful November, that’s my takeaway and I think it really puts things into perspective.

Wishing you all my love,

L x

Lessons I have learned from anger

Good day to you lovelies. Are you all settled in?

I thought today would be a good time to finish my lessons learned for now. Today’s topic is, I would say, a bit contentious to those of us with EUPD. Mainstream media would paint us as aggressive, quick to anger, and act on blind rage. Whilst I have had moments where rage and anger take over, this is simply because for myself I do have difficulty in dealing healthily with anger. It is one of the most potent emotions I experience, an ever-consuming fire. But it would always be contained, in the past I did not handle it well at all and it turned into suffering.

I want to preface this by saying I have never acted on my rage and hurt others physically, nor do I condone this in any way.

Like all emotions, anger has its place in our emotional repertoire and experiencing anger in the way I have, and reflecting on this in therapy has taught me a couple of things.

When boundaries have been crossed
Now, we all have boundaries within ourselves that safeguard our well-being, whether we are aware of them or not. Some are instilled in our conditioning as we grow, others we explicitly form ourselves. It is common for anger to rise in me when my own boundaries have been crossed, whether through words or actions. I have learned now more about the boundaries I have, and when I need to put some in place temporarily to protect my well-being and reduce the chances of me having to experience anger. Though I have healthy outlets, it certainly does not lessen the intensity of the experience.

Anger signals when I view, hear or experience things that go against my values/moral compass
Much like boundaries, we all have our own values as humans that guide our morality and ethical compasses. Oftentimes, I have become angry when my values have been crossed, when I witness something that goes against who I am as a human being. For example, injustice, or reports of hatred in the news. There have been times when my anger has gone to extremes, I will not lie. But each time I become angered now, I ask myself why, what is it in particular that has caused this experience, what can I learn from it?

Not to hide emotions
This is a big one. For so many years, I was used to putting on a mask of sanity, if you will, hiding anything and everything for the sake of others. To lessen the stigma and annoyance by other people. Yet in reality, it made things so much worse, not only for myself but to others around me, they would think I was fine and that was not the true picture. In order to properly process my feelings and emotions, they need to be fully experienced, fully shown, appropriately expressed and then dealt with.

What has anger taught you?

Wish you joy and happiness,

L x