It’s been a while..

Dearest lovely readers,

It really has been a while hasn’t it? I can only apologise.

Have you ever felt so lost it’s like you’re on a rocky path that seemingly leads to nowhere in the dark? That is what it seems to have been for me during my period of silence. Everything running out of my control and in ways I couldn’t imagine. If you have ever felt like this, then you’re not alone, I am in solidarity with you.

My health has drastically changed over the last few months and it’s taken some getting used to. I figured, whilst I was in a good place, I’d update you.

Well, I came out with a First Class degree in case you were wondering. Top of the top, my work will also be used as a good example for future students to learn from. So that saw a period of celebration. We also celebrated my partner’s 30th, it was low key but relaxing and an overall good day! My partner has been coming up to see me and will do so again this coming Tuesday since I am struggling so much. It always feels wonderful to be around him.

Mental health wise I have been up and down. I’m currently coming off a medication slowly as it didn’t seem to be as effective anymore. I was happy to do this and honestly? I do feel a bit better for it, I’m certainly not as foggy (though fibromyalgia doesn’t help). I feel a little more free when I am well. The down periods do certainly have an impact lately, I have been easily triggered and ideation is happening more than I’d like. But with the help of my mam, family and partner I’m coping.

Physically I have been rendered mostly bedbound again. The fatigue has been so real, and nigh on constant, as has the ‘fibro-fog’. Which I am sure many understand. The flares have been getting worse I assume due to my mental health worsening.

What makes this harder is the delays in treatment. I have been waiting for two months for a rheumatologist letter to get to my GP for a referral to a management clinic. My therapy for what I’m going through is now paused indefinitely. There is certainly no change coming from services soon.

So what do I do?

The disappointment with therapy being cancelled overwhelmed me. But I had a choice. Let it consume me for weeks or fight to find a way out of this darkness.

So.

I have bought some informative books from very trusted sources and am essentially going to study myself better. Making changes in my life where I can and prepare for my next meetings/appointments so I can question possible things that may help.

I am not giving up. I can’t. What good would that do?

I do firmly believe in things like correct psycho-education and self-help from the right sources, I think a lot of good can be done from that. So I’m off to study.

How are you doing, dearest? I am here.

Much love,

L x

A ramble 2.0

Dearest lovely readers,

It has been a while, hasn’t it?

Things have been tricky lately. I have been on a break on almost everything. Rambles and updates seem to be a favourite so here goes…

I spent a couple of weeks with my partner in the south west. The train down saw me stranded in the rain for a few hours before I got on track to my destination. The stress caused a week of exhaustion. But, despite the worsening mental health, it was still lovely to be beside the sea. I had some beautiful gelato and plenty of hugs and down time.

In the good news, I have just 2 weeks to wait for my degree classification. My nerves are starting to get jittery. I am eager to see my scores. The first part of my future being concluded. It is after all, 5 years in the making.

This week I was told I have fibromyalgia. This wasn’t a shock as such, more an answer and validation of what I have been going through so long. I still have yet to come to grips with having yet another chronic condition at just 25 years old. It can be quite daunting, can’t it? I have realised I have yet to speak of my physical condition history. Maybe my next post? It is all very new to me and I look forward to learning more. It is my hope that in the coming months I will learn better pain management techniques and slowly build up endurance. I may never get to where I once was but I hope to be able to at the very least be functional through my pain.

My mental health has been a greater pain lately. I will be honest and say things are getting worse. I’m reliving things I’d sooner forget. My care coordinator believes there is a strong possibility I have PTSD. So in the coming months I will also be seeking answers for this. I want answers as to what could be causing my dissociation which is occurring nearly every day. In August I hope to have an overhaul of my medication and to start the assessment process.

Now life in general?

I am getting by.

Everything is slowly opening back up. I went to the cinema yesterday and my anxiety was outstandingly high! Clearly, I have gotten out of practice being outside. It is going to be hard to adjust. I saw my two best friends Friday evening which was lovely, but I felt a little… well, I’m unsure. I don’t have many friends these days, but I appreciate those two like you wouldn’t believe. I have many challenges to face it seems.

I have been pondering and reflecting on my life, the way I have made changes. Whilst I am limited, I have faced loneliness. I have faced my other self-states. I am still going.

Whatever challenges you may be facing, I hope you keep going too.

All my love,

L x

A celebration in London

Dearest lovely readers,

It has been a while hasn’t it?

Well, I am here to talk today about little breaks away.

Following finishing university and passing my training to be a crisis volunteer I went to London to meet my partner. We spent 5 wonderful days away in London.

I have been struggling with my mental health problems quite a bit lately, so much so, it looks like a new diagnosis may be on the horizon (I will leave that to the professionals though). Even they took a break for me.

London has always been a special place for my partner and I, it’s where we first met and it’s the “middle” of where we can meet given we still live on the opposite sides of the country!

It was so relaxing, doing a spot of shopping, treating each other, visiting the aquarium. We even went for a meal out! It was so lovely to just relax and spend time one another. We enjoy London every time we go (the tube not so much I will admit).

I always say that self-care should be the basics and most simple things, but sometimes even a short break away can make all the difference. Getting to put a pause on life, even for an overnight stay can leave people feeling refreshed and rested. I think it’s an important thing to remember that we all need a break sometimes, and it’s completely okay to do so. It doesn’t have to be an expensive affair. But getting away can make all the difference to your mental health.

I feel refreshed and ready to tackle life once again, maybe it was seeing my partner but I felt safe and loved and came back home to get things on the right track again.

Have you got any little breaks away planned?

Much love,

L x

Nearing the end of a degree

Dearest lovely readers,

It’s been a while since I spoke about my personal life, and it’s been a while since I last posted. Life is just a whirlwind for me, or is it for you too?

A few weeks ago I submitted my dissertation and first ever research project focusing upon positive psychology. I got my grade back at 82%. I’m so proud of what I have accomplished. Since then I have submitted more assignments with just one left before I get a degree offer at the end of July.

I have been doing this degree since 2016, 5 long years. I think about all that I have gone through, how much has changed. I don’t think I could ever summarise this part of my life, the evolution I have gone through. For someone who thought they’d never accomplish anything, I’m getting there.

Getting a degree means the start of a life, the start of a future I love and can be proud of. It’s the start of independence for me, a sign I’m growing. I know innumerable people graduate every year, but this is something special and unique for me.

Some assignments and material was interesting and easier to get on board with, but I’ve also cried over assignments when drowning mentally and feeling like nothing would change.

There are so many options for a future career for me following getting that piece of fancy paper. I have decided on a few options. But for now, once that assignment is handed in, I will be taking a break.

My mental and physical health is still poor so I want to focus on recovering from my relapse, maybe start a new creative project, read some books. And volunteer. I have started training to be a Crisis Volunteer and hope I can go far in helping others.

Things have been a little tricky, I am always honest when I’m not okay. Some memories have been haunting me each night, things I wish I could forget. But as life goes on, so must we. I’m dealing with it better, I guess practice and exposure increases resilience.

I am starting to find joy in activities again, it’s always a slow process but we get to where we need to be. I also have some exciting trips planned as restrictions ease where I am. In just a few weeks, all being well, I shall be off to London to see my partner, we have some exciting things planned and I could not be more happy at the thought. I’m enjoying reading and finding myself to be okay in my own company again.

I guess, during these times, I want to offer a message of hope. We all have potential in our lives, and hard times come, that’s life’s nature. But we must carry on. Good things will always come back around.

Much love,

L x

Considering alcohol

Dearest lovely readers,

As mentioned in my previous post I would write a word on alcohol in our society. Now, I would like to note this is not representative of everyone’s view on alcohol. These are just some things I have noticed and felt that alcohol can be an impactful factor on well-being.

There is something important I have learned on my journey through sobriety, and that is the varying forms alcoholism. Being an “alcoholic” or someone who misuses alcohol is definitely not always what we see on TV.

We use alcohol not only to socialise, but for special occasions, celebrations, we give it as gifts, meals, to relax, to taste, to binge on, to let off steam, it’s on banners and cards to give others. You can go into stores and there is always a selection of wines, ciders, ales, beers, spirits, then mixers and alcopops. The SGS Handbook makes a poignant question: if all alcohol was packaged as cigarettes currently are, all the same and bland, would it be as popular?

We so often forget that alcohol is a drug, a depressant which can slow down brain functions whilst also inducing lesser inhibition (1).

Alcohol can easily and quickly become addictive, or used as a crutch regularly. The reduction on inhibition can lead to impulsive and dangerous situations much like other substances. I myself have ended up in unsavoury situations and positions. Often having episodes of anything bad happened. Alcohol can also leave you feeling low for days on end as a come down because of its depressant activity.

Alcoholism is related to 5% of worldwide deaths and is the fourth most preventable disease in the world (2). The result of alcoholism is a weakened immune system, poor health (both mental and physical), poorer relationships. Alcohol works as stereotypical illegal drugs in gaining tolerance and having to drink more and more to get the same feeling, and it can start from the first drink for people.

The NHS details many more risks and long term complications around alcohol use and helps to give help if needed (3).

Can alcohol be enjoyable? Absolutely. But should it be as celebrated as it is? To me, knowing what I know now, not really.

I am proud of being sober, and as someone who was told by a GP on their 21st birthday that they’d die if they kept up the drinking of alcohol, I wish I had learned sobriety long ago.

Much love,

L x

(1) https://www.addictioncenter.com/community/is-alcohol-a-drug/

(2) https://www.therecoveryvillage.com/alcohol-abuse/

(3) https://www.nhs.uk/conditions/alcohol-misuse/

Celebrating sobriety

Dearest lovely readers,

I DID IT.

One year sober today.

It’s been strange, I feel strange about it, almost like it hasn’t been so long. I know that many others are years and years ahead, but we all must start somewhere.

It’s been a difficult journey. After my final, negative experience I knew it was best to turn my head and walk away from something that has caused me so much trouble. Psychotic episodes, behaviours I no longer wanted. It took an awful lot for me to finally realise I needed to stop drinking.

At first, it was quite easy, alcohol immediately smelled horrible and appeared as unappealing. So the first few weeks were easier. But as I got unwell, it became harder, I would crave. I’ve lost count of the amount of times I wanted a drink when I was low, or desperate for an out of what I was feeling.

I used to love the partying lifestyle, never mind the drama it would bring. I used to think I’d never give it up.

But it brought damaging situations, I’d often be suicidal after drinking, I dread thinking of all the episodes I had that my mother had to deal with.

I’m baring all as an honest account that drinking has a dark side. During my journey on this path, I read a lot about alcohol, read a bit of quit lit (Sober Girl Society is great!) and it’s been eye opening just how ingrained alcohol is in our society. But that’s a discussion for another day.

I am proud of how far I’ve come, alcohol was ingrained in my life. Whilst some nights out brought great memories, there were just too many bad risks associated in my life. I saw myself ending up broken if I kept up drinking. So I made the choice to stop. To end a cycle.

There wasn’t anything magical for me when I stopped must admit.

But given the statistics of addiction and borderline personality disorder, I knew the risk. So I made the decision to make sure I did not end up as another statistic.

So today I’m celebrating how far I’ve come, and I’m looking forward to more years of sobriety. It was a great decision for my physical AND mental health.

Over the next couple of weeks, I shall bring some reviews on quit lit and a little bit of information on alcohol.

Sobriety is a difficult decision, and a difficult journey, but relying on things as vices is never healthy. I sometimes feel great about my choice, other times not so much, but it’s all about one day at a time.

Much, much love,

L x

Living with others who have mental illness

*CW: mention of suicidal ideation and suicide attempts*

Dearest lovely readers,

Today’s topic was suggested by my own mother and so I hope my experiences may be of use to you today.

As you are aware, I am mentally ill, but I am not the only one who has mental illness in my household. Every other member does too, my mother, my step-father and my young sibling. They each have anxiety and/or depression. As you can imagine, this can be really difficult for everyone involved at times. It certainly has made an impact in recent years.

To be honest, there were points that each day someone fell ‘under the weather’ and then traded someone else the day after. It was just a loop of “who is ill today?”. There have also been longer periods where one of us needed a lot more support for a longer term due to breakdowns or episodes, if you will. The most obvious being myself, I usually have a couple months stability then all of a sudden my mother starts worrying about what I might do in the night.

It is tough, because mental illness isn’t the only thing we as humans have to deal with, life still goes on no matter whether we are struggling or not. It really is a fine balancing act. For me, when someone in this house is struggling, I am instantly in panic mode, constantly asking what I can do to help and thus stress and become unwell more myself. It truly is a very, very fine balancing act. My mother is in a constant state of worry for her children who have been struggling rather chronically, I cannot speak for her experience, but I imagine it does impact her. And it impacts my stepfather.

When I was young and first met my stepdad, things were okay, I was excited. But that quickly spiralled as became unwell, truly unwell, and had delusions that acted against him. He saved my life once when I was about to attempt suicide. He has helped me through so much of my life and I have never known how to thank him.

My mam loves her alone time on a night, a chance for her to rest, but the door is always open at any time of night. When I was a party girl I often had alcohol-induced episodes, I don’t remember the vast majority of them but those I do remember, she would cuddle me, stay in bed with me, made me sure I was safe. And while we have had our disagreements (especially where my alcohol intake was concerned) as any family would, she has been there for me despite her down days.

When I was beginning to falter last year, my young sibling started to struggle more, yet they would come see me, and I would calm them and chat and make sure they were safe, I have even tried to teach them a few coping skills and worked around their needs. I worry about them, but I know they understand that no matter what I may be going through, I am there for them.

See this is the thing, yes we cannot pour from an empty cup, but family are meant to be a support, and our family work like clockwork now. We all understand each other’s needs, if something crops up we rally around and try to help and support in any way we can. Last year was ridiculously difficult, yet out of it came better communication between the family. We connected when there was no where else to go. They say this lockdown has been harder, but we are supporting each other well. We recognise when someone is not on their A-game, we act accordingly. We share more, we are more open.

I am struggling right now, in a depth I cannot recognise, yet I am still trying my very utter best to be present, likewise with the family. Supporting other who are mentally ill in the same household, can seem impossible at times, because we all just want better well-being, we all want to cope and we can pour too much out at times. There is never a perfect recipe for this. But by being aware of what we are capable of each day allows for us to be better for ourselves and for the others. Love truly is a wonderful thing.

All my love,

L x

Taking a break in life

Dearest lovely readers,

Welcome back, I hope you have had a wonderful week. Welcome to the new people joining this week, it is great to have you đź’–

Life is full isn’t it? It can be so hard juggling not only the multiple factors of well-being for yourself, but also for those around you, without adding every other aspect of life like appointments, work, hobbies… I could go on.

I think there is solidarity with all people across the world in sometimes feeling like we need a break from life, to just press pause and take a break, catch ourselves up, regroup, rejuvenate. It’s ridiculously hard trying to do that, we may feel we don’t have the energy, or time, or resources. In some cultures, resting is frowned upon, I would say this includes the UK in some sectors.

We must always be doing something. If we are unemployed, we must be lazy. We need hobbies, and nights out socialising, long hours of work, volunteering, taking care of our families, and I could go on. But I want to start breaking this stereotype of life down.

Being “on” all the time isn’t possible, we aren’t machines, we are human. And humanity needs a rest sometimes. Just to clear our heads maybe, so we would with a meditation or prayer, or a lovely bath. Or we may need something longer term like time off, traveling somewhere, or just resting in bed for a few days.

No one truly knows what we need but ourselves, and maybe someone very close to us within our support network. I’m going to be honest, it’s a reminder I need right now.

I have been so focused on getting ahead with university and my dissertation, finding a new place to volunteer, keeping in very close contact with friends, cutting down cigarettes and pop intake, meditating more, doing hobbies more, trying to walk more, cleaning my room more than I should, battling pain, battling cravings for alcohol, battling incessant paranoia and tearful night times.

While some of this sounds very positive, it’s too much. My head hurts and my heart aches. So I need to take a break. I need to hit pause, reconfigure my priorities and move with a solid plan for myself. This includes possibly being less consistent with our space that we have created. I love what we are doing here, I love our moments to connect. But I am needing to take a huge step back on everything and looking at how to keep myself in a safe place without overdoing everything. So I may post on a different day or not for a week, just for a little while.

However, do message me or comment your preferred days for reading in this space. Because it matters.

If you need a break, I hear you.

All my love,

L x

Seeking help in a crisis state

*CW: Discussion on suicide and suicidal thoughts*

Dearest lovely readers,

Things have been hard lately. I have had somewhat of an unstable week where suicidal thoughts and ideation have been prevalent. Now, suicide prevention has always been something important to myself because of my experiences, at the moment I am hoping to campaign in my community on this.

But this week I did something new.

This is difficult to say because suicide has become such a taboo and triggering topic, but how are we meant to reverse and normalised these kinds of conversations if no one feels they can speak out, I suppose it’s my turn.

I went on a very exhausting emotional rollercoaster within the space of an hour I experienced a good 3 emotional phases and this drains me quite a lot so much. It meant I spent nearly the entirety of the next day sleeping because of the exhaustion. My mind became serious but there was a tiny part that told me to hold on. I wanted to drink, I wanted to binge, I wanted to cause self-injury. Instead I turned on my laptop and waited my turn to speak to someone on a web chat crisis helpline.

Whilst I waited to speak with someone I was anxious and nervous with thoughts like ‘was I really so bad that I needed this kind of help?’, ‘Do I really deserve this?’

I then spent the next hour unravelling everything going on in my mind and my heart and by the end of the session I felt a sense of unity within myself, a warmth of an imaginary blanket wrapped around me to keep me safe.

I lasted the night.

I’m so glad that I reached out because these people truly heard me. It showed that kindness is in the world. That it’s ok and acceptable and I didn’t need to struggle alone late at night. The person on the helpline helped guide me to safer feelings and gave me strength. I know I can go back to them should I ever need to and this time more readily.

I have historical experience with suicidal thoughts but I never reached out to these helplines because I didn’t feel I was “ill enough”. I would downplay it to myself. Seeking help from a stranger online can feel so scary but it’s something paramount to be able to deal with your mind. I wish I had done something like this other times so that I was not alone and dealing with the thoughts and feelings that scare me most.

These kinds of charities, such as CALM and their helplines are vital in order to save lives, truly save lives, to show that suicide is not the answer. Their work is vital given hundreds of people give up their lives each week. This kind of conversation needs to be normalised in order to reduce the people we love becoming just another statistic in the eyes of others.

We need to be able to say suicide is not the answer, we need to be able to see people as they are and give them safety, that is paramount. We need to rid of the archaic stigma that suicide is self, that we have to be “ill enough” to seek out support. Let’s start today, because there is hope and light to move forward.

Much love,

L x

If you are feeling suicidal I hear you, please, please contact someone whether your local crisis team, Samaritans on 116 123, contacting Papyrus, texting shout to 85258, or using CALM’s helplines at thecalmzone.net

The power of small: Time to Talk Day

Good morning my lovely readers,

I’d like to take a moment for you to check in with yourselves, how are you doing? For many, January seems to have been a long, hard month, a difficult time for many. I hope you are all well.

Next Thursday is a special day. It is the final Time to Talk Day. For those whom may not know what TTTD is, it is a day ran by Time to Change encouraging everyone to have a conversation with people around mental health in order to end mental health stigma. It is the final one now that Time to Change is ending. The theme is “the power of small”.

I am enjoying this theme because it really does remind me of how powerful “the small” can be. Many are hosting online events or campaigning on social media. As I do not have social media I won’t be partaking on the likes of Instagram or Facebook.

The aim is to remind people that you don’t have to great gestures to make a change in someone’s life, simply asking a friend or a family member how they are doing can be just as powerful. For myself, I am going to be sending an email/letter to my MP in the hopes of being able to raise more awareness in the community and see if anything can be done to help those becoming unwell in my local area.

The power of small is mighty. We don’t have to focus on a specific day, we can live the power of small. Realistically, we all have small actions that set the foundations of our days, which can ultimately transform our life. Small is the foundation. You don’t start your morning without many small actions such as hydrating yourself, getting dressed, when unwell, these “basics” can make all the difference.

Sometimes we have to go back to our foundations as a way of building back up and to foster more positivity within us. Get to where we need to be. Those foundations are small, but they’re strong.

I try to remember that small actions mean a lot, I also try to embed it with kindness. Because if we are kind to one person, or five people, in our lives or strangers, in a week, we might help an awful lot of people that way. We give a sense of meaning and community to us and those around us by showing small acts of kindness, even just by checking in with them.

So I hope you have some lovely conversations this week, and may you have a wonderful week ahead.

All my love,

L x