The importance of a support network

Hello all. I am wishing you joy, contentment and good health right now.

First off, we recently have had an influx of new lovelies joining us and I wish to say welcome to an accepting place where I am honest about my experiences but also try to bring hope and positivity into the discussion. Please do join in, and I hope you settle in well.

For those who may not know, a support network is is a group of people that you are connected to, who help to support you through life. It could be family members, friends, support workers, people you can go to when you need them. For myself, my support network consists of my immediate family, a handful of friends, and my partner and that’s enough for me. It’s a group of people who I trust, who uplift me and inspire me when I’m feeling low and so much more. I have been relying extensively on my support network at the minute with everything that’s going on in my life.

They can act in small ways such as helping me with food or simply understanding that at the moment I am quite limited in what I can do, or it could be greater gestures such as taking me to appointments throughout each week which had been a fair amount at the end of last year.

Once upon a time I wouldn’t have dared to seek support in others, I thought I had to rely on myself because it felt like it would all be a misunderstanding. It could cause the greatest suffering to myself, opening up in a way that I didn’t feel comfortable with. But now, I have no qualms about seeking support because I know it will be there.

It can be hard personally because we are thought of in society that we should be individualistic.

Pulling our socks up and getting out there.

Doing what we need to do.

But I am here to challenge this notion. We only got to where we are today because of collective support, I’ll say that again, we only got to where we are today because of collective support, collective intuition, collective knowledge, collective strength and collective hope. So why is it that nowadays it is frowned upon to ask for help even in things such as our daily jobs? Why is it we who have chronic conditions be the reason to blame when we cannot pull our socks up and do what what society deems correct?

I dislike living in an individualistic society where I have to live under the court of public opinion that does not fit the narrative my life has took. I know of so many people who have tried to go it on their own and haven’t succeeded. I see it hurt them time and again, and through my previous work I learned that we cannot do it alone. It is simply impossible, there is always someone around who will help another individual, I firmly believe in that.

When I finally learned the confidence to speak out about when I needed help and what kind of help I needed, I was glad. I managed to gradually spread that to my few trusted friends, to my current partner and my family. While I can sometimes feel like a burden, I suppose this is all natural, I am grateful for all that they do for me. I feel no shame in asking for support, for encouragement, for love, for inspiration, for strength, for kindness: especially kindness. It is a basic human right to show others kindness, compassion and understanding; this is essential in a support network.

More importantly we all deserve a support network, we all deserve our little community that give us strength and clarity and hope among many other things. If you feel so isolated and like you have no one, I promise you there is someone and that someone will turn into many people who will be what they you need them to be. We cannot go through life alone otherwise what kind of life is it?

This is something I am passionate about. I am grateful for my support network and I love them all dearly. Although at times it may feel like I don’t deserve them, in reality I do, because I help them back and I won’t forever need help getting around the house. I might go through long periods where I do a lot other times a little, my life is uncertain right now now but having a support network grounds me and there are so many benefits to having us apart network. I say to you, you deserve the love and support that I have received and more.

All the loving-kindness to you,

L x

Positively anti-New Year’s

Hi all!

Today I have decided to let my partner write a post, he wishes to be known as L . Now this isn’t a rant about New Year Resolutions, it’s more of a look at bringing a brighter new year with something more fulfilling and positive instead of a focus on restriction and change, losing something. So without further ado…

~~~~~~~~~~~~~

Happy New Year everyone, I hope you are all having a brilliant start to a (touch wood) amazing year.

I have been asked by the lovely L to write a post and what better framing device would be the idea of a New Years resolution.

The concept is pretty common and to some extent we have all decided, in the new year, that something about us has to change.

My issue with this idea may minor but I feel the hit the crux of the concept.

  1. Oftentimes we stretch too far, the goal we set is unsustainable for a sudden change. Though it may start well, the inevitable petering out of high New Years goals is a frequent and well heard thing.
  2. Others may feel pressured to change because of the new year. The idea of “New Year-New Me” is everywhere and the idea that we must be forever changing or else we fall behind can be far too much for many.

So my solution? My idea is an anti-new years revolution!

Instead of something new, what is a something of the previous year that you appreciated? Did you start reading more? Maybe you have been drinking more water as of late? Maybe you have been enjoying cooking more and trying new recipes?

Instead of in stating something new, take something that made you happy into the new year. A continuation of yourself into the new year, instead of a pressure to alter ones self a continuation of what made you happy.

Last year I started reading again, I managed to get through quite a few books and I fell in love all over again with some old favourite reads. I wish to continue that into the new year, reinforcing a good habit and get a few more good reads reviewed.

Just an idea to consider, what anti-resolutions would you make? I hope you have a wonderful year everyone.

Post-Christmas

Hello all.

I apologise for the lack of posting last week, I was a bit unwell and burned out after a very difficult Friday, but I am now well-ish and back.

This week has gone well, I feel very appreciative of my mood being better. As the world knows, Friday was Christmas. I had doubts a few months back about what Christmas would look like and whether there would be joy. I was very glad to be proven wrong, this Christmas season has been utterly wonderful. My partner who is still here for a little while got to celebrate Christmas with my family.

Simply put, there was good food and very good company. I got some very thougthful presents and there was much joy to be had and some good entertainment. I ended the day rather relaxed. Boxing day yesterday, was a bit busy doing a few jobs that needed doing but we have more than relaxed today.

I am not going to list or show all the presents I got, that was a reason why I came off of social media, I don’t see the point. It was actually so wonderful to simply be in the moment, taking the odd polaroid picture to capture the day and be with those closest to me. I sent the occasional text to friends, it was bliss.

I dressed up a bit for the day, which I haven’t done in so long and felt nice. By 4pm I was in loungewear I won’t lie. I also managed to stay sober despite the temptations which is a massive win. I have also found two new foods I like this festive season. I am so proud of myself!

I have nothing but praise and thanks for this year’s Christmas; I am ever more thankful each year that passes.

How was your Christmas?

Love,

L x

Reflections on November

Hello all my lovelies,

If you read my posts you know I love a good reflection. So I thought, why not reflect on a tumultuous month such as November?

I will be honest, November is a month I am struggling to remember giving that my mental state is not at a decent capacity. There were definitely some atrocious days but I can’t say it was all entirely bad and these words have such strange meanings, I guess the correct version would be it was a hard-hitting month.

So I have a couple of topics in mind, let’s take it that way. I think rounding up with all the things that cause stress would just make this a very depressing post. While I’m not for toxic positivity I do think I need to be realistic.

So, let’s start with relationships. Relationships are often a foundation of how we cope, they are apart of us. Having at least someone to back us up can make all the difference. I can happily say I have had no problems with support and positive relationships during November. My family may not have understood what I was going through, but they checkeup on me and helped where they could. Whether that’s taking up additional chores from myself or feeding my wonderful guinea pigs: and they gave me respect. My partner was fantastic, he was essentially my sounding board and while I tried to be a good partner to him, he was very respectful when I couldn’t give 110 percent all the time. So no complaints here!

I guess health would be the more contentious issue. I will be straight up honest and say that my GP he was of no use during this time, I understand that there are many stresses going on behind the closed doors (I’ve seen what happens as a GP receptionist). But I have come to find out that when I asked for my antipsychotic back and he made no mention of my circumstances to the psychiatrist it essentially was “can L have her antipsychotic back?”, so I’m glad I took it upon myself to write a letter about my mental capacity when I was more lucid. I would like to let you know that I have since gone it back until my telephone assessment with the mental health team in a couple weeks time. They were shocked at how I have deteriorated and quite unsure as to why my GP did actually take me off it. So I am happy to say I have been sleeping for the first time in many weeks.

With physical health, I’m not further forward until I have MRIs and the next rheumatology appointment but I have since purchased a support to help me sit properly, knee braces and a cane to walk better. They do help so that is also a bonus and I haven’t gotten physically worse which I really count as a win.

University! What a bonus. It’s been a really positive one, because I got back my first assignment results for my final year at 72% and 78% which I am quite happy with. I have feedback that is constructive and can use in the next assignment to hopefully improve upon. My tutor who will be helping me on the research project in particular has been so supportive and understanding which is really just refreshing so I know, should I falter infuture they will be there to ensure that I take care of myself.

November felt truly terrible in the moment but this is why reflection is important. You gauge the true impact of each moment and my reflection has shown me that yes it was awful but I had a pretty successful November, that’s my takeaway and I think it really puts things into perspective.

Wishing you all my love,

L x

The joy of handwritten letters

Hello all, are you ready to get writing?

I’ll get straight into it, for quite some time now I have loved writing letters to people, to friends and other loved ones. I even have a pen pal who lives in Oklahoma and I’ve written letters since I was young starting with my late step-grandfather. Really there’s just something so wonderful about writing letters.

With all of this modern technology; of instant messaging, texts, calls, emails (even though that seems a bit 90s unless you work in an environment that requires emails), writing letters is seen as such an old-fashioned pastime by many people and I want to dispel the myths about this.

Let’s start with one of the main reasons why I encourage you to write a letter to someone, whether it is your future self, even a friend in the same time that you live in or your parents. It calls on connection. When you write a letter you can speak your truth in utter privacy you can ‘talk’ for as long as you want: that letter has no limits. It can be any subject of your choice and it’s your automatic thoughts and feelings on paper that allows for someone to really see how you are feeling and who you are; it doesn’t have to be reduced to characters or a few words on a status.

The recipient of a letter gets the span just a few minutes away from their lives and feeling a part of yours and I think that’s something really special. I saw the addictive and unfortunately bad side of social media but I’m not the one to discourage people from texts and emails, I still use them as a method of communication. I will not judge anyone who prefers that method I’m not anti-technology – I just love sometimes being able to escape away from my laptop, and my phone, and my Kindle, away from all the screens around me and just have this fresh sheet of paper to write whatever comes to mind. Whatever comes from the heart without embarrassment of feeling like I’m sharing too much. I feel like I can surprise someone with small gesture of openness to say, “hello, how are you, what is going on in life, take this moment to connect with me”.

Writing letters has been studied so much in regards to well-being, various mental health charities have shared their findings that writing letters and having penpals can actually reduce loneliness. Loneliness currently is an epidemic that needs to be expelled and there are such a simple tools and writing letters one of them. Writing letters is also known to help your cognition and executive function so that you have a better ability. It also improves the creativity because you are just writing and writing almost as if it was a free writing exercise.

Sometimes I feel I have so much to say but I don’t know who to say it to or how to express it and sometimes a letter can help. Or a little note to say “hey I’m thinking of you” and straying away from just letting someone see words on a screen. Not believe me, I know the power of the word and the power of the internet and I can sound hypocritical because I am writing to you on an internet blog. I have no qualms about technology, either way we interact online as long as it’s safe and enjoyable. But sometimes it can be addictive, and it can feel like you’re not really connecting to someone, and I think sometimes we have to revert to simple methods. There’s just something wonderful knowing that a bit of positive post, something a bit out of the ordinary, a little surprise comes in the mail box alongside all the bills and it can brighten someone’s day, at least that’s been my experience.

What are your thoughts on this? Because I’d love to hear other people’s opinions and I’m also up for having more penpals it means I get to buy cute letter writing sets, let me know.

All my love and happiness to you,

L x

Lessons I have learned from anger

Good day to you lovelies. Are you all settled in?

I thought today would be a good time to finish my lessons learned for now. Today’s topic is, I would say, a bit contentious to those of us with EUPD. Mainstream media would paint us as aggressive, quick to anger, and act on blind rage. Whilst I have had moments where rage and anger take over, this is simply because for myself I do have difficulty in dealing healthily with anger. It is one of the most potent emotions I experience, an ever-consuming fire. But it would always be contained, in the past I did not handle it well at all and it turned into suffering.

I want to preface this by saying I have never acted on my rage and hurt others physically, nor do I condone this in any way.

Like all emotions, anger has its place in our emotional repertoire and experiencing anger in the way I have, and reflecting on this in therapy has taught me a couple of things.

When boundaries have been crossed
Now, we all have boundaries within ourselves that safeguard our well-being, whether we are aware of them or not. Some are instilled in our conditioning as we grow, others we explicitly form ourselves. It is common for anger to rise in me when my own boundaries have been crossed, whether through words or actions. I have learned now more about the boundaries I have, and when I need to put some in place temporarily to protect my well-being and reduce the chances of me having to experience anger. Though I have healthy outlets, it certainly does not lessen the intensity of the experience.

Anger signals when I view, hear or experience things that go against my values/moral compass
Much like boundaries, we all have our own values as humans that guide our morality and ethical compasses. Oftentimes, I have become angry when my values have been crossed, when I witness something that goes against who I am as a human being. For example, injustice, or reports of hatred in the news. There have been times when my anger has gone to extremes, I will not lie. But each time I become angered now, I ask myself why, what is it in particular that has caused this experience, what can I learn from it?

Not to hide emotions
This is a big one. For so many years, I was used to putting on a mask of sanity, if you will, hiding anything and everything for the sake of others. To lessen the stigma and annoyance by other people. Yet in reality, it made things so much worse, not only for myself but to others around me, they would think I was fine and that was not the true picture. In order to properly process my feelings and emotions, they need to be fully experienced, fully shown, appropriately expressed and then dealt with.

What has anger taught you?

Wish you joy and happiness,

L x

A ramble on my health

How are we all? I sincerely hope you’re all well as the nights get earlier.

So I haven’t done a ramble in a while and I know it was liked a while back. So I thought I’d do a little update on health. I find with both my physical health and mental health, each will dip one after the other.

In August, I had a day being bedridden and thought, “I’ll heal up quickly, my arthritis has spread to my knees but I’ll be fine”. Let me tell you, it definitely was not fine. After a few blood tests, medication changes and many calls with GPs I was finally referred to a rheumatologist. I now spend most days in bed, I have almost fallen a few times because my knees have given way. Just the other day I spent 7 hours in A&E due to my ribs burning and having shortness of breath. I am rather immobile. On top of this, my mental health became disastrous at the same time which has been very rare. I had an awful episode the other week.

Yet I’m still here.

I’ll be honest, the fatigue is getting to me, I really am feeling like everything is out of control. I started November 1st utterly depressed, then manic, making lots of goals and plans to improve my fitness and mental health. Yet it was not to be after this week. And I have accepted that. I guess the fear of what is going on in the world got to me. And that is okay too.

People often say we have to help ourselves and have this notion that we can just fix ourselves when really, chronic conditions are usually pretty much here to stay.

So what have I done to help myself? I have followed basic self-care and fought to be referred to rheumatology, my appointment is next week and while I will definitely struggle to get there, I will be there. I have took up private therapy to work through everything. I am taking new medication for my mental health, having been taken off my antipsychotic and adjusting to that. I have accepted that all of this is a process that could months, but I’m prepared to see it through. But for now, I shall have to do what feels right for my body and mind, even if it’s not the way I want to be.

I have found that in these times when everything seems wrong, we must especially have hope, find the strength to keep on and keep going forward, otherwise what was the point of starting the journey to fight? I will not lose the joy and wonder of life. I will keep writing, reading, studying for uni, studying Buddhism. I will keep myself going and fill life with what I love as much as I can.

I shall also use the wonderful Black Dog Institute mood tracker to keep an eye on things and see where I’m at with myself, my 2012 style.

It is times like these where I really see the inder-dependency of both mental health and physical health and the impact of each other and how they link. When I feel so limited in my body, my mood utterly drops. When my mood is low I don’t try to do much with my body which hurts it. Times like these are why I’m so grateful for when I am well. Yet, I’m strangely grateful for these times too when I think about it and reflect. I know that doesn’t make sense. But nothing is permanent, and I learn what I can from these points and I’m reminded of my unadulterated strength of being able to get through this.

Keep going lovelies, we got this.

Much love,

L x

My new routine

Hi all!

Today is just a little update on my routines, I thought a little ramble and a small, easy-going topic might be appreciated amongst everything going on in the world.

So a few weeks ago, I became unwell, quite badly. But after a day embroiled amongst my emotions I knew I had to take control. So I re-started my routines, in order to give my days structure. Using the behavioural activation techniques I learned at the start of therapy I formed an outline of how my days would look. For example, when I would study and which module/topic, when I would need to do things such as budgeting and housework or laundry. I also set time for reading which has become my main hobby.

This instantly boosted my mood, having a framework to plan against lessened the decision fatigue. I also have a firm reminder in my head it can change if needs be, depending upon my state of mind, or how my body is (currently in a 3 months long flare up of something, currently awaiting to see a rheumatologist).

It looks like so (Monday to Thursday):

Around 8am – awaken, read dharma texts, get ready, sort piggies, meditate, housework and other jobs I need to do
Around 10am – study
Around 12pm – see to bun-bun, have lunch
Around 1.20pm – study
Around 3pm – tidy away, change clothes, meditate
4pm onwards – read, dinner, read, watch a bit of TV online
6pm – journal, take meds, prepare to rest in bed

I know it sounds silly going to bed so early, but I have found I do need more sleep at the moment, I will fall asleep around 9pm to awaken at 7, which I spend again, relaxing in bed.

This routine works for me, I feel like I am making the most of the day I can, I will reiterate that this is but a brief guide for me, if I have appointments or seeing friends I move my schedule around, simple as that.

Have anyone else got a daily routine and amongst morning/night routines? Anything you’d like me to try?

Sending loving-kindness your way,

L x

Lessons learned from mood swings

Good morning one and all. How are you today, have you had enough rest, plenty of water?

Let us get straight into this as I think it may get a little interesting. One of the facets that make EUPD so complex is the mood swings. For me personally, my mood could change in second and minutes, there would rarely be a day that passed where I was only facing one or two moods. It was an endless torrent of waves in a crashing storm. Once upon a time, I had little I could do except let the waves of emotions batter me about in a broken dingy.

I wish I could say I have learned many valuable things from my mood swings, much like depression and mania have taught me. I suppose in reflection I have learned some of the vital lessons in life but little in way of useful advice for you all.

How to fight
When I say how to fight, I most certainly do not mean violent acts. That is never the answer, which anger taught me (more on that another week). I mean in the sense of keeping on going, to ride the waves. To not let my emotions stop me from living life. I guess I only, truly, really learned on reflection when mood swings are at a minimum now. I was so sick of constantly changing, I cannot imagine the stress my brain was under, flurrying chemicals to chemicals and nerves and parts of the signal, an endless barrage. I guess I got so sick I wanted to show my brain what was what by keeping on. Never ceasing. Drinking and partying, college, work, relationships, episode after episode. I still kept on. That is how I learned to fight initially, just see the next day through.

Then 2018 happened. I had to find another way. And so I did. In seeking and demanding support. In defying misconceptions held by the mental health services, which is ironic I know. I wanted to start seeing the good, I tried to deny the villain-esque thoughts but that just made things worse. So I went further and fought for therapy. I went head on with whom I now call Medusa (borderline me). I showed Medusa her new cage and have carried on with life, with minimal interruption bar winter.

Life is messy
I have not had the most conventional life I will admit. But dang, if mental illness has not prepared me for the messiness that is life, then it has not taught me much. Life will never be a ‘happily ever after’ and I have made peace with that: I am just glad to have peace sometimes. There are always going to be setbacks, and instability and hard times, heart-wrenching times. But I have learned, with a healthy support network, a good partner by your side, and a determination like no other, then life’s messiness won’t always mean going back to square one.

We do not have to go back to square one, we could even go to square one and a half, we may take a couple of steps back, but we will always go forward. And I hope you take this as a sign, that if things are tough right now, there is a way forward. One thing that helps me sometimes (when I can do it physically), take the words from House of Pain “Jump Around”.

Much love,

L xx

A good day

Credit to chibird.

I love a good day, don’t you?

But what does a good day mean to you? Much like the adorable picture above, I imagine we all have a very different picture in comparison to one another. There is so much variation that makes a good day, and having these days are worth living for

For me, a good day lets me have that happy feeling at the end, where I am refresh feeling refreshed and light hearted but knowing I had accomplished something that day. No matter how big or small, such as being able to do some housework, even sending an email.

The beauty of a good day is in its uniqueness. You could accomplish so much, hit some personal targets, or good do what you needed and rested. I think the most important part is feeling happy at the end of the day: feeling good.

What constitutes a good day is up to you, whether it is filling up the day with hobbies, or what needs to be done; the brightest way to see if the day has been good and joyful is through reflection. A way to do this is through the classic ‘what went well’ exercise used in positive psychology. By listing things that went well, no matter how small, much like gratitude, and then writing down why it went well, how it went well, you will find the good in almost every day.

We need to fill our heart with happiness at this time, in all our accomplishments, no matter how minor they may seem. Because we not always have good days, but there is bound to be some goodness in all days.

I wish you all happiness right now,

L x